‘NUL POINTS’: HIV Community gives dismal verdict to NHS England over PrEP delays

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The HIV community is uniting during Eurovision week to give a damning verdict on NHS England’s delays on a game-changing HIV prevention drug.

 

And the verdict is a resounding ‘Nul Points’.

 

PrEP is a pill taken once a day by HIV negative people who are at high risk, to effectively prevent HIV transmission.

 

The ground-breaking PROUD study showed that it reduced the risk of HIV infection by 86% for men who have sex with men, with 100% protection seen when taken as prescribed.

 

It is currently available in France, Israel, US, Kenya and is being trialled in many more countries around the world – but the UK is lagging behind. Even Eurovision special guests Australia are outdoing the UK by rolling out PrEP to 2,000 men as part of a major project.

 

Meanwhile, the UK now has the worst HIV epidemic of any large country in western Europe, having overtaken Spain, France and Portugal. The UK used to lead the way in tackling the HIV epidemic, but now is woefully behind other nations, because of NHS England’s delays on PrEP.

 

In March, NHS England abandoned its own plans for the treatment to be made available to people at highest risk, and then weeks later - following universal outrage from the HIV community - agreed to ‘consider’ the issue once more.

 

NHS England now needs to get its act together and make a full commitment to HIV prevention. Every day access this life-changing treatment is delayed, seven more men who have sex with men in the UK are avoidably infected with HIV. The theme of Eurovision this year is ‘Come Together’, and so community organisations and campaigners including London Friend have come together to make their message heard on social media.

 

As the Eurovision Final approaches, PrEP supporters have begun tweeting NHS England with photos of themselves holding up ‘Nul Points’ signs.

 

How to join in:

Download your ‘Nul Points’ sign here and tweet @NHSEngland to tell them why you’re demanding PrEP to be made available for those at highest risk of HIV.  For example:

 

It’s #Eurovision week so we’re giving @NHSEngland a dismal #nulpoints on HIV prevention #PrEPnow

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London Friend has won a GSK Impact Award!

 

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We’re thrilled to have been announced as a winner of the GSK Impact Awards 2016. The Award, run in partnership with The King’s Fund, recognises excellence in charities improving health and wellbeing in their communities. London Friend is the only LGBT charity amongst this year’s ten winners.

 

The Award particularly highlights our work on chemsex, a significant emerging health issue mainly affecting gay and bisexual men. It recognises the work we have done to develop services such as our SWAP intensive therapeutic programme, and also the work we have done to improve the knowledge and competence of healthcare professionals and policy makers working with chemsex. The judges also commended our volunteering programme and our use of our building to enable other LGBT groups to meet.

 

The prize comes with £30,000 in unrestricted funding, as well as access to a leadership development programme and the GSK Impact Awards Network of 66 other charities. The Award will be presented at a ceremony held at the Science Museum in London on Thursday 12 May, along with nine other winners. An overall winner, which will receive a further £10,000, will be revealed on the night.

 

Monty Moncrieff

Our CEO Monty Moncrieff with our Award letter

Lisa Weaks, Third Sector Programme Manager of The King's Fund, said: ‘London Friend is an impressive charity. It has led the way in identifying 'chemsex' as a health issue and identifying and developing solutions. It is one of the oldest LGBT charities in the United Kingdom but it has continued to evolve over time, responding to the changing needs of its community and services users. This is a well-deserved award.'

 

Monty Moncrieff, Chief Executive of London Friend, said: ‘We’re thrilled to win a GSK IMPACT Award and delighted that the hard work and dedication of our volunteers and staff team supporting LGBT people has been recognised in this way. Chemsex has emerged as a significant issue affecting gay and bisexual men’s physical and mental health and our Antidote service has adapted to address this very current need, while London Friend has retained the coming-out and counselling support for LGBT people we have been known for over 40 years.’

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Rise – a new HIV Prevention partnership in Lambeth, Southwark & Lewisham

 

London Friend is a partner in Rise, a new partnership delivering HIV prevention and sexual health services in Lambeth, Southwark & Lewisham (LSL). We will be providing one-to-one and group support to gay, bisexual and other men who have sex with men where their risk is related to chemsex.

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Men wishing to gain more information about managing chems and preventing HIV can refer into Rise at Antidote, and over the coming months we’ll be establishing new locations within Lambeth, Southwark and Lewisham to access support and information.

 

The Rise Partnership is led by NAZ, who together with Race Equality Foundation, GMFA and London Friend’s Antidote service will provide HIV prevention and sexual health services to Black African & Caribbean communities and gay, bisexual and other men who have sex with men (MSM)  across Lambeth Southwark & Lewisham (LSL) from  April 2016.

 

For more information, or to access support, contact Antidote’s outreach manager Jamie Willis (click to email) or call us on 020 7833 1674.

For more information on The Rise Partnership click here.

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UNIQUE – a new group for LGBT people with disabilities

 

 

We’re pleased to announce a new monthly group at London Friend. Unique will provide a social space for LGBT people with disabilities.

 

Starting on Monday 4th April the group aims to provide a safe space for LGBT people with any disability to meet others and to socialise. The group has been developed by LGBT volunteers with disabilities themselves. The building is wheelchair accessible and carers are welcome.

 

Unique will run from 7 – 9pm on the first Monday of each month (except for Bank Holidays). No appointment needed, just turn up!

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#CharityIs – an LGBT perspective

 

 

This week we’re supporting #CharityIs a new campaign from Charity Bank aimed at raising the profile of the work Britain’s charities do and challenging some of the negative press aimed our way. Our CEO Monty Moncrieff discusses charities from an LGBT perspective.

 

The #CharityIs campaign is presenting some intriguing statistics such as 78% of UK adults have used the services of a charity in the last year. Over half of us have volunteered, and some 9.3 million have received counselling or emotional support. For starters we can see that one thing #CharityIs is impressive!

CharityIs imageSome of the media discussion about charities right now worries me on many levels. There’s the fallout from the likes of Kids Company and the aggressive fundraising alleged against some outsourced companies on behalf of the major large charities that impacts on us all. Misleading reports risk tainting public perception of how charities really make and spend their money. These stories are mainly about the big players in our field, but they affect charities of all sizes. For those of us running small and specialist charities we face not just the backlash of this but also a set of additional challenges threatening our survival, and already causing our demise.

 

At London Friend we’re a charity working to improve the health and wellbeing of lesbian, gay, bisexual and trans (LGBT) people. We’ve been going since 1972 making us the oldest in our sector. For many years we’ve been helping LGBT people coming out or exploring their sexual orientation or gender identity. We’re a specialist charity working with an often marginalised group who tell us they choose us because they don’t feel safe or understood discussing these issues in mainstream services. All our staff or volunteers identify as LGBT and our service users see this as a sign of confidence their needs will be met.

 

MontyWe’ve done a lot of work thinking about our sustainability. We have a lean operating model, mainly investing in staff who support over 100 volunteers to work with our clients. A few years ago we added the LGBT drug and alcohol project Antidote to our range of services, which has meant we now work with some of the most current health issues affecting our communities. And with help from Charity Bank we managed to buy our building when faced with eviction from the local authority, cutting our costs and growing a capital asset. Our hard work was recognised in the National Diversity Awards in 2014 as LGBT Community Organisation of the Year.

 

LGBT charities have developed from within our own communities: LGBT people coming together to support ourselves when others didn’t. LGBT charities do some amazing work: understanding the complex nature of same-sex domestic abuse; advocating for victims of LGBT hate crime or sexual assault; supporting young LGBT people whose family support has broken down after coming out; and harnessing the drive of gay & bisexual men living with HIV to prevent further transmission among their peers. With legislative protections our lives have become easier but when things go wrong there’s still a demand for this specialist support: when we asked whether our Antidote clients would have felt comfortable in mainstream drug and alcohol services only 12% said yes.

 

As LGBT charities our future is not just subject to these negative perceptions of charity as a whole that pervade parts of the media, and we’re not just fighting with everyone else for a share of ever-decreasing funds. Our starting point in the funding bunfight is already at a disadvantage: the overall funding for our sector amounts to just 0.04% of all voluntary sector income – 4p in every £100. Even with the most conservative estimates of how many LGBT people there are in society (and current guesses start at about 3% and head upwards) this is a massive under-investment in LGBT people’s needs.

 

ToniThe threat to our survival is already here. This year alone we’ve seen the sudden closure of one major LGBT mental health organisation, Pace, stating it was no longer financially viable for the charity to continue: “The financial climate is very difficult for small charities, especially those delivering services at a local level with continuing cuts to local authority budgets” reads a statement on their website. The Guardian has reported that the national LGBT domestic violence service Broken Rainbow faces an uncertain future, and London’s long-standing Mosaic Youth is likely to see funding stopped from April as their local authority struggles to find £54 million of savings.

 

Mosaic’s case highlights another difficulty for specialist services: the council is tendering for one single youth service which will need to work with everyone. For young LGBT people this is especially problematic. Whilst they explore their identities they often don’t wish to disclose this outside of specialist LGBT projects for fear of further ostracism within their wider communities. LGBT services  provide vital protection for people fearful of others’ reactions. In our last service user feedback survey 100% of our clients said it was important or very important to have a specialist LGBT service. 100%! Every single respondent to our survey.

 

DanielI have every sympathy with local authority commissioners here: they are being asked to work miracles with an ever decreasing pot of money. I don’t blame them for wanting to manage fewer contracts as their own teams shrink too. But LGBT and other specialist services will suffer here, along with our service users.

 

#CharityIs many things; in our LGBT communities it’s the ability to engage with marginalised people, the ability to mobilise huge numbers of volunteers to support their peers, and the ability to create safe spaces where our populations can thrive. But if we’re not careful we might also soon be extinct.

 

Monty Moncrieff

Chief Executive, London Friend

@montymoncrieff

 

 

You can support London Friend’s work through a regular or one-off donation: click here for more information or text LDNF15 £10 to 70070 to donate £10 through Just Text Giving.

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New LGBT Club Drug briefing

 

 

London Friend's Chief Executive has contributed to a new LGBT supplement to the NEPTUNE Club Drugs project.

 

The supplement is part of a wider project which published the UK’s first set of clinical guidance on club drugs and novel psychoactive substances (sometimes called ‘legal highs’) which was published last year, and provides information for clinicians and healthcare staff supporting users of these emerging drugs.

 

 

NEPTUNE LGBT Cover croppedThe LGBT supplement was written in response to a specific set of issues around drug use in LGBT populations, particularly those related to chemsex by gay, bisexual and other men who have sex with men (MSM). It highlights evidence around risk and harm, and provides background information for those supporting LGBT people in drug treatment.

 

Although most of the available evidence relates to MSM and the report highlights the relative lack of information about drug use by lesbian and bisexual women and trans people.

 

You can read the LGBT supplement here, and access the full NEPTUNE Clinical Guidance here. London Friend’s own report Out Of Your Mind provides recommendations and toolkits to improve the experience of drug and alcohol treatment for LGBT people.

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Closure of Pace

 

 

Late on Friday afternoon we herd the very sad and shocking news that one of our fellow LGBT services, Pace, is to close this week after 31 years providing mental health support to LGBT people.

 

We’re very saddened to hear this; Pace has been a partner with us over the years, most recently as a member of the National LGB & T Partnership, working to ensure the voice of LGBT charities and the experiences of our service users is heard by NHS England, Public Health England and the Department of Health.

 

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Is is especially saddening to hear about the difficulties Pace experienced in securing funding. We too are concerned about the longer-term sustainability of specialist LGBT services, with cuts to central and local government funding and to public health spending. This is worrying trend for the LGBT charity sector, which as is stands accounts for just 0.04% of voluntary sector funding overall – our entire sector receive just 4p in every £100 of charity income.

 

Due to having to find efficiencies within their own teams, there is now a tendency for commissioners to seek large single contracts, a process which excludes LGBT services from most tendering processes. Equally there is no guarantee larger providers such as drug treatment, smoking cessation or mental health services, will want to sub-contract to LGBT providers to ensure that their services reach diverse communities.

 

The short and long term effect on LGBT people of the closure of Pace remains to be seen. We anticipate an increase in demand for our counselling service, as people begin to look elsewhere, which could increase waiting times considerably.

 

For now our thoughts are with the volunteers, staff, and above all, service users of Pace as they come to terms with this sad news. We wish them all well, and thank you for your great work over the years. You’ll be sorely missed.

 

To support London Friend’s work to improve the health and well-being of LGBT people by making a regular or one-off donation click here.

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Christmas & New Year Support

 

Christmas & New Year support

The festive season can be a lot of fun, but for some people it’s a time of heightened anxiety. It’s the season to be jolly, but sometimes that can tip over into excess. Here’s some information to keep you safer over the Christmas and New Year period.

 

If you’re partying know your limits. Everyone likes to let their hair down at Christmas but that morning glass of fizz can catch up with you if you’re still going by the evening, and parties do tend to last longer and be more frequent at this time of the year. You can find our tips for cutting back and pacing your drinking here. Don’t forget that we are inviting people to join us for a Sober Start to 2016, going booze-free for a month. You can sign up to fundraise for us via a sponsored alcohol-free January or donate to the campaign via Just Giving.

 

Christmas-Pudding_ColourIf you’re going to be partying using drugs you can find lots of information about reducing the risk here. Remember to look out for your friends, and if anyone at your party overdoses call 999.

 

If you’re having sex, or hoping to see the New Year in with a (gang) bang remember to stock up with plenty of condoms and lube. Gay & bisexual men will find plenty of safer sexual health advice over at the website of our friends at GMFA.

 

If you think you may have picked up an unwanted gift due to exposure to an HIV risk you can seek advice & PEP (within no more than 72 hours) from a GUM clinic such as 56 Dean Street, Mortimer Market Centre orBurrell Street in central London. If these are closed you can access PEP through your local A&E. In Central London these can be found at:

 

University College Hospital

235 Euston Road, London, NW1 2BU

Tel: 0845 155 5000

 

Chelsea and Westminster Hospital

369 Fulham Road, London, SW10 9NH

Tel: 020 8746 8000

 

St Thomas’ Hospital

Westminster Bridge Road, London, SE1 7EH

Tel: 020 7188 7188

 

 

If you feel alone this Christmas and want to talk to another LGBT person our friends Switchboard will have their helpline open daily 10am – 11pm. If you are at risk of abuse or violence at home, Broken Rainbow has published some tips along with details of their Christmas opening times, including Christmas Day. The charity Crisis has opened its Christmas centres for homeless people and will run until December 30th. If you feel suicidal you can call Samaritans 24 hours a day. In an emergency go to your local A&E.

 

London Friend’s services will resume on Monday 4th January as normal. Our Antidote drug & alcohol drop-in will run on that day 11 – 1 in Kings Cross.

 

We wish you a happy, safe Christmas and a healthy 2016.

 

London Friend

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Join us for a Sober Start to 2016

 

 

Today we’ve launched out Sober Start campaign, encouraging LGBT people to give up alcohol for January and kick start sustained reductions in their drinking. Those joining can be sponsored to enjoy a booze-free start to the year and raise money for Antidote, our specialist LGBT alcohol and drug service.

 

Research indicates that LGBT drink more, and more often, than society as a whole, and this could be increasing long-term risks to health. Sober Start is about taking a break, detoxing for a month after the excesses of Christmas and New Year, and thinking about reductions to drinking all year round.

 

Make January a corker

 

Having a month off can bring health benefits such as sleeping better and feeling more energised. Cutting back on a longer-term basis can reduce the risks of more serious alcohol-related health issues in later life.

 

Read more about the campaign on out Sober Start pages, where you’ll also find information to help you assess your own drinking and advice to cut down over time.

 

To sign up for sponsorship for your Sober Start, or to make a donation to the campaign, head to our Just Giving pages: http://campaign.justgiving.com/charity/londonfriend/soberstart2016

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Giving Tuesday: why giving matters to LGBT charities

 

Our CEO Monty Moncrieff discusses why giving matters so much to LGBT charities.

Today is Giving Tuesday, an initiative to encourage people to support the work of charities and other good causes. It’s an opportunity to make a donation to your favourite cause, or to consider an offer of time through volunteering or organising a fundraising event.

 

This is the text of a blog I wrote to mark last year’s event, but the issues for LGBT charities have not gone away, so I’m republishing it again to mark this Giving Tuesday.

 

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For LGBT charities giving is a vital lifeline. Services like London Friend rely on the generosity of givers to be able to provide the support we do to over 3000 LGBT people each year. Our work is regularly supported by over 100 volunteers who help to run our coming out and social groups, our helpline, our counselling service and Antidote, our LGBT drug & alcohol service. Volunteering is a way of giving back to your community, and supporting fellow LGBT people who are experiencing a difficult time.

 

We rely too on monetary donations, as a one-off gift, as the result of a fundraising event, or as a regular monthly donation. No amount is too small: £5 will help us answer a helpline call. £10 will buy the coffee & biscuits for one of our drop-ins. £40 will help us provide a counselling session. £100 will help us to train our volunteers.

 

As a sector LGBT charities are significantly underfunded. Despite LGBT people making up at least 2.5% of the population (at even the most conservative estimates) our sector receives just 0.04% of the total funding to voluntary sector organisations – just 4 pence in every £100. A recent report from the TUC suggests that this tiny under-investment may be under even greater threat as funders see cutting diversity as easy savings, mainstreaming this work into generic services.

 

A recent review of income in the LGBT sector found that LGBT charities were more reliant on precarious public sector grants, which account for almost two thirds of sector income, as opposed to just a third of the voluntary sector as a whole. With further squeezes on spending this places specialist services at risk. The same review found that LGBT charities receive less in individual giving than charities as a whole, just 21% of our income versus 42% in the wider sector. This is why individual giving and initiatives like Giving Tuesday are so important to us.

 

Losing funding or the support of volunteers would lose the quality that specialist LGBT organisations bring. Our service users routinely tell us they value specialist support as this makes them feel safe, welcome, and understood. It’s important that the value of specialist diversity organisations is not lost, and through Giving Tuesday we can highlight the importance of supporting this essential work.

 

You can make a regular or one-off donation to support London Friend’s work here. You can donate your time as a volunteer – find out more about volunteering with us here. You can find out more about fundraising for us by holding your own event or sponsored activity here.

 

Monty

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